Tag Archives: EDS

Three zebras to symbolize EDS

May Awareness Month: EDS and my life

May is national Ehlers Danlos Syndrome awareness month. EDS is a genetic connective tissue disorder that affects many different body systems. The international symbol for EDS is the zebra. EDS is a rare disorder, like a zebra is rare compared to a horse.

I struggle with a hypermobility syndrome, most likely hypermobile EDS. Most of my joints move beyond a normal range of motion, causing injury and chronic pain. I also have gastrointestinal symptoms, respiratory symptoms, and eye problems. I have made a list of some of the ways EDS affects my life. I especially struggle with severe chronic pain. I want to help raise awareness of this syndrome for better medical treatments and public understanding.

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